The main task of the public affairs intern will be to assist in the organisation of the Brussels Rare Disease Week (RDW). Brussels RDW is a week-long series of events organised by EURORDIS in Brussels, plus a series of preparatory webinars. The goal is to empower rare disease patient advocates, with knowledge and skills to effectively participate in advocacy activities at the European level and as a result influence the EU decisions that have a direct impact on their lives. Through RDW, the hope is to raise awareness of rare diseases and present a strong and united message to MEPs and other policy-makers in Brussels on behalf of the rare disease community.
Responsibilities will include, but will not be limited to:
- Help guide the patient advocates through the “Brussels maze”, by providing insights on how the EU institutions work;
- Help with the development of advocacy documents and tools;
- Map and reach out to key stakeholders, including EU Institutions and other Brussels-based organisations or permanent representations;
- Schedule meetings with high-level policy-makers for patient advocates, making the case on the importance of working on rare diseases at the EU level;
- Provide technical support for the organisation of online meetings with patient advocates and other events of the RDW programmes;
- Prepare updates for the website and other media-related materials.
- A strong interest in EU affairs demonstrated by a thorough understanding of the European institutions and their working;
- Graduate/undergraduate degree in Political Science, International Relations, EU Studies, Law, or a related field;
- Genuine enthusiasm for public affairs and advocacy;
- Motivation to work for an NGO (experience working for an NGO desirable but not required);
- Fluency in English: The working language of EURORDIS-Rare Diseases Europe is English. A very good level of written and spoken English is required for interns;
- Excellent verbal and written communication skills, reflecting an appreciation that each audience requires its own approach;
- Strong analytical skills and attention to details;
- Working knowledge of Microsoft Office (including Word and Excel) and other IT tools (meetings and activities will mostly be organised online);
- Highly organised, detail-orientated and able to prioritise/cope under pressure;
- Ability to work independently.
Desired skills and experience:
- Understanding of the health sector
- Affinity with the rare disease cause;
- Practical experience with EU mechanisms and instruments, including legislative procedures;
- Experience using all social media channels and writing content for social media.
Please be sure to indicate that you saw this position on Globaljobs.org